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Dawn Anderson, Dlora Dalton, and
Susette Green, eds., Every Good Thing: Talks from the 1997 BYU Women’s
Conference [Salt Lake City: Deseret Book Co., 1998], 183 - 184.
© 2001, Deseret Book, GospeLink
2001, Used by permission
What's Right With Me: ADHD
SAM GOLDSTEIN
Not
long ago, a mother told me about her child's plight. He was bringing unfinished
work home from school nightly. For a time, this schoolwork masqueraded as
assigned homework, but she soon realized that the rest of the class completed
this work at school. This family, which—like most of us—had only a few hours
each evening to enjoy each other, was now embroiled in fighting over homework
that was in actuality schoolwork, unfinished by a child with Attention-deficit
Hyperactivity Disorder (ADHD). The frustrated mom wrote a catharsis letter to
vent her feelings. (Catharsis letters are for journals, not to be sent.) She
wrote to his teacher: "Since it appears that I am going to be doing at
least two hours of your job each evening, I'm going to start sending Jake's
laundry on Mondays and Thursdays. Please don't mix the colors with the
whites."
Children with ADHD are a unique group of individuals. They require unique
strategies for parenting. Remember what life was like before you started to have
children? At the Neurology, Learning, and Behavior Center, we call that period
B.C., which doesn't stand for Before Children; it stands for Before Chaos. The
children who come to see us are having trouble meeting the expectations of
adults. According to the adults, they don't behave right, or feel right, or
think right, or learn right. Because they don't fit the system that we adults
have designed for them, life has become chaotic for everyone.
When
you envisioned the kind of parent you were going to be—patient and calm, never
angry, doing things democratically, and so forth—and compare that to what has
happened along the way, especially if you've had a child who differs a bit from
the norm, I predict that you have learned a lot. For one thing, you may have
discovered that children with ADHD have more power to control you than vice
versa. For another, you will have discovered that mental illness is inherited—we
get it from our children! My purpose is to provide some helpful suggestions for
parents of children with ADHD. I'll begin with a general framework for
understanding ADHD.
In taking
client histories, I ask parents to bring me pictures of their children. One mom
showed me a family photo she had just taken at her daughter's preschool
graduation. It was mid-August. These children would be in kindergarten in a few
days. They were outside singing a song, lined up in straight rows, teachers
standing tall, parents watching. This mom's rather active little girl was not
mean or nasty, just one of those children who get asked to leave preschools
because they don't sit on their carpet squares the way they are supposed to. So
I asked, "Which one of these little girls is yours?" She said,
"Oops, she's not in this one." I thought, Oh my, it's only
preschool, and this child's in time-out already. The mother produced a
second picture, scrutinized it briefly, and said, "Oh, there she is. See
her—way up on the hill?" She explained that her daughter had agreed never
to get out of sight. As long as she was in sight, the teachers allowed her to
wander; they had given up trying to get her to keep her body in one place. I
thought, Too bad. This behavior, which was labeled
as acceptable in preschool, a week from now in kindergarten is going to be
labeled as bad. The teacher is going to say, "This is bad. You can't do
this."
How we
label a child's behavior powerfully influences our thoughts and behavior toward
that child. If I call a child "careful," I like what he is doing. If I
call him "slow," I have a very different response to the same
behavior. If I decide that a child is creative and energetic, I deal very
differently with her than if I regard the child as hyperactive and difficult.
So, we have not only to think about what we want for our children and how to
help them get there, but we have to think about what we think about our children
and why we label some behaviors good or bad.
Children with ADHD commonly display multiple and varied problems, but the core
problem is impulsivity. Impulsivity leads to difficulty in three other skill
areas: an impulsive child has difficulty paying attention and is easily
distracted; an impulsive child has difficulty delaying rewards; an impulsive
child tends to be excessively active and emotional.
Let's
consider the emotional factor in more depth. Children with ADHD express the
extremes of their emotions faster and with greater intensity than is normal for
their age. They also become frustrated quickly, often over minor events.
Everyone around a child with ADHD is well aware of the child's presence and
current feelings. Another problem with impulsivity is threshold. Little things
get big reactions, but ten minutes after a major blowout over some minor event,
children with ADHD can't understand why you are so upset—they've moved on to
something else. Think about what life is like for these children. Imagine
yourself with their extremes of emotion. When you are happy, you are so
happy people tell you to calm down. When you're unhappy, you're so
unhappy people tell you to calm down. Think about what they learn about emotions
and feelings. Too often their feelings are what get them into trouble rather
than being qualities to cherish in human interaction.
So
impulsivity can lead to problems, but is being impulsive bad? Why isn't it good?
Children who exemplify, as educator Rick Lavoie has said, the OTM-OTM syndrome—"on
the mind, out the mouth"—take higher risks, act without thinking, and
have difficulty separating thought from feeling. These children learn from their
experiences but have trouble acting on that knowledge because immediate needs
overwhelm their limited capacity for self-control. But is this behavior, the
tendency to act without thinking, bad in a moral sense? No. It is a morally
neutral quality, a normal variant of human behavior. Some people are very
reflective; some are not. Children with ADHD are not. Some people are typically
calm; some are volatile and exuberant. Children with ADHD are not among the
calm.
In our
modern, competitive society, we tend to look at everything, including children's
behavior, on a scale from the best to the worst. If your child is in the top 5
percent for how fast he runs, the soccer coach wants him on the team. If she is
in the bottom 5 percent, the soccer coach says, "Go play with dolls."
If she is in the top 5 percent for how well she reads, she's in the gifted
readers class that puts on a play at the end of the year; if he is in the bottom
5 percent, he gets to do remedial phonics exercises and maybe watch the play—if
he's not in time-out. Which activity will teach a child that learning to read is
fun and worthwhile? In our society, children and adults in the bottom 5 percent
for how well they manage their impulses—how well they control their emotions,
stop and think, do the right thing, or learn from experiences—are in trouble.
What I
want to suggest is that we look at ADHD and identify the core deficit. Children
with ADHD don't have any trouble paying attention when the task is something
they have chosen to do. Give the child with ADHD a roll of quarters. Send him to
the noisiest, loudest, most distracting video arcade you can find. Offer him a
favorite machine. He's not inattentive. He pays attention just fine. He has
trouble paying attention when tasks are repetitive, uninteresting, effortful,
and not of his choosing. Now I've just defined half of what children have to do
in school. If we identify what ADHD children have trouble with, those four
factors will determine their level of difficulty. The more these qualities come
into play, the more trouble these kids will have.
It's
important to see the world through the eyes of these children if you are going
to be effective advocates for them in school or enjoy them at home. When a child
with ADHD is doing something he likes, he pays attention as well as everybody
else's kid. When he doesn't like it, doesn't choose to do it, or it is
repetitive, he has trouble. The way I stick to something that I don't like is
with guilt—I was raised by a Jewish mother, so I know how to wield guilt. I
think, People are counting on me to do this. An adult with ADHD, however,
faced with a task she doesn't like, simply finds something else to do. When I
say to an adult with ADHD, "But, Nina, that had to get done," she will
reply, "Oh, I know, but it wasn't interesting. It didn't hold my
attention." And that's that. Guilt doesn't kick in.
When
most children make a mistake, a parent asks, "What were you thinking
when you did that?" We want to understand their motives or correct their
thinking. When children with ADHD make a mistake, a parent must ask, "What weren't
you thinking when you did that?" Their problems occur not because they
don't know better, have a mean streak, or are inherently bad, but because they
don't think before they act. They often know what to do, but they don't do what
they know. A child with ADHD becomes distracted by his own thoughts and desire
for immediate reward. In these instances, the child acts impulsively.
Although the child may have been punished numerous times for similar misbehavior—"Don't
run out in the street without looking first!"—and is able to clearly
explain the rule, when the moment arises, she acts impulsively and does not
follow the rule. The problem isn't in acquiring knowledge but in the
follow-through. Children with ADHD are not clueless but cueless. Let me explain.
When a pedestrian gets to a street corner, the corner curbing is a cue to look
both ways. If the pedestrian forgets to act on the cue, understanding that
traffic is dangerous doesn't help.
Impulsive children often don't pick up on cues. Punishment for yesterday's
trouble seems to be enough for most children, faced with the same choice, to
trigger the thought, "Oh, I'm not going to do that again." But a child
with ADHD doesn't recall what happened yesterday without a reminder cue. These
children have trouble learning to do repetitive things because they don't pick
up on cues. After a month of practicing tooth brushing, Norman doesn't have to
be rewarded anymore. He goes into the bathroom, and the bathroom is a cue: Oh,
brush my teeth. After a month of practicing brushing teeth, Jed, a child
with ADHD, the day I don't remind him or give him a reward, goes in the
bathroom, looks around, thinks, Why am I here?—and out he goes. Now,
does he know what to do? Yes. Does he do what he knows? No. If you assume this
is deliberately obstinate or "bad" behavior, you're buying into
trouble, because it is not. Jed simply needs more repetition, more practice, to
adequately reinforce those cues. As a parent, you can adjust your expectation
and say, "This kid needs more practice."
If it
takes most children thirty days to learn to remember to brush their teeth, the
ADHD child may need three hundred. Now, that's not three hundred days of trying.
That's three hundred days of establishing the habit, of developing an internal
cueing system. All children eventually learn to look both ways when they reach
traffic and to brush their teeth. So it is not hopeless. These children are not
morally, emotionally, or psychologically diseased. They do not have some
terrible problem as human beings. They're simply at the bottom for certain
qualities that our society increasingly values: Hurry up. Move quickly. Do it
fast. Catch on quick. Don't waste time. Let's go.
The
first lesson, as we talk about what to do, is to make the task more interesting
because if the task is more interesting for these kids, they stick with it
better. The second lesson is to make the payoff more rewarding. This group of
children, because they need more practice, seem to need more immediate,
frequent, predictable, and meaningful payoffs than other kids. They don't like
punishment; they like rewards just like anybody else. But they seem to need more
rewards. If I am going to continue asking my child to practice brushing his
teeth five times as long as his brother, I'd better make that task five times
more interesting. And I'd better make the payoff five times as enticing. So make
the task interesting, make the payoff enticing, adjust your expectations, and
allow more practices. Or if that's more energy and creativity than you can
devote to this particular task, expect it to take longer and be more patient.
Eventually everybody learns to brush his teeth.
As for
speeding up the learning process using appropriate medications, let me clear up
a couple of misunderstandings. First, stimulants are performance enhancers.
Divide any group of ordinary people and give one half a stimulant and the other
half nothing. The half receiving a stimulant will make fewer mistakes on boring,
repetitive tasks than the half without a stimulant. In one study some years ago,
entire classrooms of children were given low-dose stimulants. These were not
children who had significant problems—nor does the study say that the teacher
was given a stimulant. But every teacher reported after the trial that all the
children paid attention better and did better work. That's not a reason to add
low-dose stimulants to school lunch. It's a reason to recognize that the brains
of children with ADHD, in fact, operate in basically the same way as the brains
of the rest of us. Stimulants work the same way for everyone. Some individuals,
however, have a lot more room for improvement in attending to boring, repetitive
tasks than others.
About
medicine, my second point is that pills won't substitute for skills. We
shouldn't overstate the benefits or understate the liabilities. Not a single
study indicates that if you take your Ritalin today, you'll turn out to be a
better adult. About six hundred studies, however, suggest that if you take your
Ritalin today, your mother and your teacher will be less likely to be angry with
you today. So what the medicine provides is relief from symptoms. I want this
message to thread through everything else I have to say about the benefits of
medicine for behavior modification. Relief of symptoms is not enough. We can do
a lot of things to relieve the symptoms of children with ADHD and give them
survival tools, but giving them life skills requires something more than
treatments for ADHD. If a child's mother is an untreated depressive who cycles
in and out and his father is an antisocial alcoholic or a never-home workaholic,
then with or without medicine, behavior modification, or school intervention,
that child's chances for a happy, successful future are slim. That will be true
for any child, with ADHD or without.
For
any child, the best predictor of what therapists call "life outcome"
is the quality of family life. That is true for any child, including those with
ADHD. The good news, then, is that biology is not destiny. It affects
probability. A family's genetic risk factors—or lack of them—do not
guarantee that every child in that family is going to turn out a certain way,
good or bad. How you rear your children and the quality of your relationships
with them determine on what field the risk factors are played out.
For
me, medicine is a tool. If parents say, "I don't want it," I say,
"Well, here's the information. You make that decision. I'll support
you." If parents say, "This is great. This will help us. I want
it," that's fine, too. I want parents to be experts, to make informed
choices, because they have to be the advocates. If parents harbor unrealistic
expectations about what medications can do, they run the risk of attempting to
treat nonmedication problems with medications and believing that more and more
medication is needed to solve the child's problems. Medications will not cure
learning problems, resolve a deficit in social skills, nor remedy an emotional
disturbance.
Also,
at some point, at a certain age, the child has to be in charge. The child must
tell the parent if the medicine makes a difference. What I tell children is,
"The medicine is a tool. It doesn't fix you. And it doesn't fix the world
to make it go better for you. If you pick up the tool and use it effectively,
life will be better. If you choose not to use it, it's not going to make any
difference for you." The child should be in control, not the medicine.
Now
let me provide some general information about how children with ADHD fare in
school settings. First, let's look at intelligence and achievement. It has been
argued that children with ADHD are innately less intelligent than their peers
who do not have ADHD. Careful research suggests that this is not the case;
rather, we are observing the effect of impulsive, inattentive behavior on test
performance. As a group, children with ADHD appear to be as intelligent as their
peers without ADHD.
So why
do report cards of elementary school children with ADHD, as a group,
characteristically look worse than those of their peers without ADHD?
Achievement testing suggests that most are learning adequately. They simply are
not performing. Although there appears to be a greater incidence of specific
learning disabilities among children with ADHD, most appear to have intact
learning skills. Over time, however, the cumulative effect of lack of attention
and completion of work takes its toll. By adolescence, a significant number of
students with ADHD begin to lag behind their peers in at least one academic
subject.
Two
other traits trouble teachers of children with ADHD: (1) their uneven and
unpredictable ability to perform a given academic task, and (2) daydreaming.
Let's consider the first factor: performance. A third grader with ADHD may
successfully rattle off the complete times tables in ninety seconds one day and
find most of those facts have vanished the next day. A mother drilling spelling
words will breathe a sigh of relief to find the list already mastered by Tuesday
only to be dumbfounded when the child can't spell those same words on Thursday.
She feels sure the child "just isn't concentrating" or isn't
"trying"—but that's not the problem. Uneven performance extends to
skills as well as retention of facts. Teachers frequently reassure children with
ADHD that they can do it "if they try" and "they did it yesterday
so they should be able to do it today." This is somewhat analogous to
telling a child he hit a home run the last time at bat, and, therefore, he
should be able to hit a home run every time at bat. Frequently, completing work
for the child with ADHD is equivalent to hitting a home run.
Children with ADHD are also frequently described as daydreamers. Studies suggest
that they are not as much daydreaming as they are interested in something other
than what the teacher is focusing on. Children with ADHD appear to engage in a
significantly greater degree of nonproductive behavior than do their peers who
do not have ADHD. Most elementary school age children find something productive
to do during unstructured activities. Children with ADHD characteristically
engage in unproductive activities, such as zipping and unzipping their coats or
rearranging the clutter in their desks.
To be
an advocate in the school system for your child with ADHD, be proud, patient,
and persistent. That's Goldstein's rule. What special help should these children
receive in school? How do they learn best? What settings are best suited? They
do best in organized and structured classrooms with clear rules, a predictable
schedule, and separate desks. Teacher feedback should be frequent, immediate,
and positive. Minor disruptions are best ignored. Rewards should be consistent
and frequent. Self-paced rather than teacher-paced tasks can be helpful, and
expectations should be adjusted to meet the child's skill level—both
behaviorally and academically. Keeping up isn't as important as keeping going.
Although there is no way to predict which children or when, by adulthood at
least one-third of children with ADHD have outgrown the core problems and do not
experience serious difficulty. Another third continue to be bothered by some
ADHD symptoms. The remaining one-third may have more significant difficulties in
habits, jobs, and marriage.
What
about teaching styles? The best teacher is one who can adjust and find the best
in every child. Beyond that, I don't think any particular qualities are
essential. Should kids with ADHD have teachers with ADHD? Probably not. Nobody
would know what time it was, when to start or stop an activity, or what happened
to the homework. But that might be better than an unreasonable teacher reared by
authoritarian parents who shames and blames a child who loses homework.
What
do teachers need to be able to teach? Put yourself in the shoes of the child
with ADHD. What do your teachers want from you? Basically, they want you to
stop, start, and think along with everybody else. They want you to think about
what everybody else is thinking about. They don't want your mind on the beach in
the Bahamas somewhere. They want you to start working when everybody else starts
and to stop when everybody else stops. Don't start before; don't stop after.
When everybody else comes in from recess, you come in.
Can
children with ADHD do that, or do they need a special educational setting? If
parents step in as advocates for their children, I think adaptations can be
made. These children learn best when they talk and move and question and
interact with their learning environment. Does that mean there is something
wrong with them? When I ask a teacher to make an adjustment so a child can move
a little bit or have his hands on the learning materials, teachers will
sometimes say, "I just don't have the time." My response is, "You
know, hands-on, interactive learning is good for everybody. You don't need to
set up a separate curriculum for one child. Do it for the whole class."
Again, the principle is: what's good for kids with ADHD is good for everyone,
and what's bad for everyone is extra bad for kids with ADHD.
Above
else, the child with ADHD needs compassionate understanding, both at home and at
school. Parents and teachers should not pity, tease, attack, be frightened of,
angered by, or overindulge this child. They must understand the condition is
real; it involves critical skill deficits; it is primarily a disorder of
competence, not defiance. In other words, the child did not cause or want the
condition.
So in
working with schools, identify your child's strengths. Be proud. What works
best? Schools tend to quickly gloss over strengths: "Oh, he's a nice kid.
He smiles," and then they spend all their time on what's wrong. No. I want
to see his strengths. Tell me his academic strengths and how you are going to
make them stronger, so he feels like he is really good at something
academically. That's what will get him through life. As my friend and colleague
Bob Brooks says, "If you've got a big sea of dysfunction, you'd better have
big islands of competence to rest on."
Unfortunately, although some people may eventually learn to make ADHD an asset,
in our society being given a diagnosis of ADHD at ten years of age has zero
assets. I'm not talking about treasuring your child as a family member. I'm not
discussing your relationship with your child. I'm referring to his or her
ability to deal with the world we've designed for children, and ADHD is a
liability, period. If the world would make some adjustments, these children
would function better. The world is not about to do that, however, so we must
focus on how we can adjust the child. What I ask children is, "What is it
we don't understand about how you learn, about what you need?"
One
last word about education and your role as parents in preparing your child for
life. We tend with children to focus on what's wrong with them and then try to
fix it. What we've discovered is that focusing on what's wrong with children and
fixing it relieves symptoms but doesn't necessarily mean their future is going
to be better. Remember that ADHD involves a set of behaviors and problems that
are managed, not cured. You as a parent have to create a balance. Yes, the
teacher is concerned with getting the spelling done. But your relationship with
this child is more important to future happiness. So if you've got only ten
minutes to spend with this child today, and you can either fight over spelling
homework or take a walk, take a walk. I'm not saying the spelling is
unimportant, but you have to create a balance.
One
day a mother came in obviously upset. "Help me. I'm losing my child,"
she begged. At first I thought she was talking about divorce. She wasn't. She
had a third-grader with not just ADHD but learning problems as well, and she
devoted two hours of every afternoon to working with her child. She had
overheard him tell his friend that he didn't care if he ever saw her again
because if she left, he wouldn't have to spend his afternoons doing this work.
That's not worth it. If you're going to spend an hour working on what's wrong
with this child, you'd better spend an hour reinforcing what's right. Balance.
Most
children with ADHD exhibit impulsivity, hyperactivity, and inattention. A
smaller group, about 10 percent, are inattentive without hyperactivity. They
respond to Ritalin but not quite as well. Theirs is a different problem. Those
kids have different risks, different life outcome probabilities, and a low
probability of substance abuse. Whenever I mention substance abuse, parents'
alarm bells go off. Let me emphasize: these are not "bad kids." People
will say, "Oh, ADHD? Substance abuse. ADHD? Criminal behavior." Not
so. If you take a group of children with ADHD, and they do not develop beyond
being just a pain in the neck (meaning plenty of irritation but no serious
problems with delinquent behavior, depression, or anxiety), then they have no
greater risks for substance abuse as teenagers or seriously dysfunctional
futures than anybody else. ADHD doesn't dispose a child to the disease of
addiction. ADHD is a catalyst. A child with ADHD is more likely to try something
on an impulse. Placed in a bad environment, impulsive children are more likely
to get themselves into trouble, especially if they don't have parents willing or
able to struggle with them during the teen years, setting limits and boundaries,
hanging in there and loving children when they are hard to like.
My
message to parents comes down to this: you can make the difference for your
children, not just by giving them medicine and by understanding ADHD but in the
way you live your lives. Children don't do what we say; they do what we do. You
are the best model for your children. The way you go about living your life, day
in day out, is the best insulator for children with ADHD.
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